Hello...i am back! And Hello Lucy im in Aylesbury too....

julia28 · Joined: 12 Apr 2008 Posts: 7 Location: Aylesbury, bucks

HI everyone, and new members....

I cannot for the life of me remember my old log on so im back under this one.
Lucy; Just logged on and saw there is an in Aylesbury... now thinking its slightly bizarre that there are 2 of us from such a small place on here, where abouts do you live?

Anyway, thought i would update you all on my not so small little fella, Junior is now 2 and going great guns, he is wearing size 3-4 clothes and is a good 2 inches taller than my mates kids. Fingers crossed we arnt seeing any gastro problems and aside from being a huge pickle and a massively picky eater all is good. He has also been joined by a little brother Leo who had no complications and is like a big budda!

Sue - i saw you still post here, hows Charlie, is he still as cheeky as ever? Did Babyinmarch Rach have her 2nd does anyone know?

I will make more of an effort to reappear now im back!
xxx

Lucy · Posted: Sat Apr 12, 2008 1:46 pm

hello, im in hartwell. where abouts are you?! we will have to meet up!! xx
_________________
Proud mum to Ella, born 04/11/07 with gastroschisis

julia28 · Joined: 12 Apr 2008 Posts: 7 Location: Aylesbury, bucks

hiya,

where is hartwell ( im not local to ayles so a bit useless with places) i'm in bedgrove which is about 10 mins out of the city centre. Are you on facebook, if you are im julia soames - there is only 1 of me!
Defo up for meeting, im guessing you had a lot of the team we did - i had Mr Grant and ended up in 4D ( surgical ward) with the fab nurses there. Glad to hear your little lady was out so quick, i think we were out in 20 days which i thought was pretty quick!

Jules
xx

Lucy · Posted: Sat Apr 12, 2008 6:23 pm

i know begdrove. hartwell is near the aylesbury college on the way to stone. mr grant is stoke hospital isnt he? we were referred to john radcliffe in oxford although i think i met mr grant once. we were also out really quick - 15 days!! i will add you on facebook. will be good to chat! xx
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Proud mum to Ella, born 04/11/07 with gastroschisis

sue martin · Posted: Sun Apr 13, 2008 1:27 pm

Hiya Jules,
Congratulations on the safe arrival of baby Leo. So glad your two little guys are well. As for Charlie .......................... Still a complete nightmare to feed. He's so fussy with his food he has me picking out flakes of herbs in super noodles(one of the very few foods he will eat) Confused

Im awaiting news of a refferal for him to see a psychologist over his food refusal. Its been so long, each day arrives with a new battle. I've tried every trick in the book to encourage him to have fun with food but more often he pushes it away and says its nasty! In saying all that he was 3 in Jan and bang on for his weight (2stone8lb) dont ask me how he manages to put weight on as he eats like a mouse and never sits still. He is in age 2-3 for his trousers as the age 3-4 fall down but he is in age 3-4 fir his tops. Think he'll probably take after his dad for his build Rolling Eyes

Anyway, lovely to see you back on here. i've kept an eye on your blog for any updates.
much love
xxx Smile

_________________
Lots of love from Sue,mum to Charlie born with Gastroschisis Jan 18th 2005.

julia28 · Joined: 12 Apr 2008 Posts: 7 Location: Aylesbury, bucks

hi Sue,
I've been useless with the blog ( hangs head in shame!) however ive got loads of pics of the grown up boy on my facebook - if you arn't on there this is the link to them
http://www.facebook.com/album.php?aid=15436&l=dfce8&id=686558053
http://www.facebook.com/album.php?aid=22436&l=891ea&id=686558053
Charlie's food phobia sounds like a huge stress, i thought Junior was picky but im going to keep stum from now on - do you have any idea how long it will take for the referral?
xxx

danii_79 · Joined: 25 Jun 2008 Posts: 3 Location: AYLESBURY

Hi everyone,

And all the Aylesbury Gastro kiddies!! ( I thought that mine was the only one)

I have just registered on here (Finally) I have visited the site since 2004 when at 17 weeks into my pregnancy my son Dominic was diagnosed with Gastroschisis, it was a real life line for me reading everyones storys and understanding the condition more.

Danielle X

Lucy · Posted: Sun Jun 29, 2008 7:41 pm

wow, maybe its something that they're putting in the water down in aylesbury?!! where abouts are you dannii?xx
_________________
Proud mum to Ella, born 04/11/07 with gastroschisis

julia28 · Joined: 12 Apr 2008 Posts: 7 Location: Aylesbury, bucks

HI Danni,

This is all very wierd, such a small place and already 3 of us on here....hows your little one doing now?

danii_79 · Joined: 25 Jun 2008 Posts: 3 Location: AYLESBURY

Hi everyone,

We are just off the weedon road( for the next few weeks).

My little man is absolutely fine thanks , he was out of the hospital in 25 days and we have never looked back.

He is quite slim, only 2 stone 4 but has no health problems what so ever and eats like a horse!!!!! Though this was not always the case as when he was younger he would only eat fruit and raw veg!!!! Cant complain really!!

Does seem rather strange how there are three of us on here from Aylesbury all with Gastro babies.

Where you all diagnosed at your first scan or 20 weeks?

How was your experience with being diagnosed???

Ours was terrible, i was told by the sonographer there was a problem with the baby, not what the prob was just that there was a problem, we were then put in a back room for an hour and a half on our own until a doctor came down with a sheet printed off the internet giving the briefest of brief descriptions of Gastroschisis. He could not answer any questions and told us that he had made an urgent referal to JR .We had to wait 3 days then were sent over to JR where we were treated so fantastically by the most brilliant team of staff and this standard of care continued through out my pregnancy. When i gave birth to him i was treated like a princess by the midwives that were with us, nothing was any trouble at all and the aftercare for my son was brilliant . We were under the care of Mr Johnson and then transfered to ward 4D .

Brilliant hospital and staff i could never do enough to say thankyou to them !!!

julia28 · Joined: 12 Apr 2008 Posts: 7 Location: Aylesbury, bucks

hiya,

glad to hear he is doing well hun. We got diagnosed at 14 weeks, the sonographer at stoke mandiville thought something was not right and mentionned gastroschisis but said to come back 4 days later as my dates may have been wrong, anyway we went back and it was confirmed on a friday and on the monday we were at Jr. We had Mr Grant and then Junior went to 4D for recovery. I had the most fantastic care there too, i can't thank them enough - i do keep saying when i finally get round to doing something charitable i want to raise money for them.